The 5p- Society coordinates Family Support through the Regional Family Support Coordinator. These Coordinators are parents of children with the syndrome who have volunteered their time to assist other parents and professionals in gathering information about the syndrome.

The Regional Family Support Coordinator is your primary initial contact into the organization.

FOR THE UNITED STATES:

Region Contact Phone Number
Midwest Joan Steele 618/687-3006 (after 6pm CST)
East Coast Ruthie Liberman 781/861-3962
West Coast Dawn Sadler 907/474-0956
Rock Mountain States Kathy Phelps 970/259-3588
Plains States Crystal Marshall 316/669-8367
Southeast Deana Bryant 870/802-2193

FOR CANADA:

Region Contact Phone Number
Eastern Canada Dan Deyell 705/887-4770
Western Canada Paula MacDonald 780/467-9829