About The 5P- Society
5p- Syndrome is a chromosomal deletion disorder resulting in a wide spectrum of intellectual and developmental abilities. Each year in the United States, approximately 50 to 60 children are born with 5p- Syndrome, also known as Cri du Chat Syndrome. These individuals will likely need a lifetime of support. Our Society is a support organization that works diligently to spread awareness of the syndrome and provides valuable information, education and support for families, educators, and medical professionals in order to maximize the quality of life for those with 5p- Syndrome. Join us.
How has The 5P- Society changed your life?
When our daughter Angela was born thirty years ago, we were pretty much in shock. The booklet about Cri-du-chat that we were given was outdated and severely lacking in hope. The diagnosis we were given was confusing and mind-boggling. I secretly wished for a disability that I knew something about… Read More
Having a child with any disability can be difficult, but knowing that I have a community of members to turn to for information, support and friendship is amazing. I am so grateful for the 5P- Society.
Being a part of the 5P- Society has changed my life because I belong to a community with world wide members. I have made some life long friends through Facebook and at the conferences that I attend. I have helped so many different families over the years and it is amazing to give back to the Cri Du Chat community.
It has allowed me to know others who truly understand what our family goes through. It has allowed me to feel less alone. It has given me hope on days when I needed it the most.