Below is a list of people that can put you in touch with other families in your geographic area that may have a child close in age to your child. They can also provide informational literature.
|The United States|
|Midwest||Joan Steele||618-687-3006 (after 6pm CST)|
|East Coast||Ruthie Liberman||781-861-3962|
|West Coast||Jennifer Wong||916-983-4954|
|South East||Shari Campbell||251-776-6430|
|Eastern Canada||Christy Hammond||519-425-4404|
|Western Canada||Contact firstname.lastname@example.org||for referral|
5P- Around the World
International Cri du Chat Website – A list of contacts for many countries around the world.
Parent to Parent Support
Parent to Parent Support Coordinators
|Danielle Karcz||(603)email@example.com||New Hampshire|
|Christy Hammond||(519)firstname.lastname@example.org||Toronto, Ontario, Canada|
Lista de Contactos en Espanol
|Mari Ramirez||(254)email@example.com||Abbott, TX|
|Natalia Rodriguez||(520)firstname.lastname@example.org||Tucson, AZ|
|Barbara Mena||(917)email@example.com||Raeford, NC|
|Elsa Perez||(909)firstname.lastname@example.org||Pomona, CA|
|Hayden y Rosanne Nanton||(832)email@example.com||Trinidad y Tobago|
This is where we connect siblings of persons with the 5P- Syndrome with other siblings for mutual support, sharing of experiences, and creating new friendships.
Click on one of the social media links below to connect.
The Sibling Support Project
The Sibling Support Project is the first national program dedicated to the life-long and ever-changing concerns of millions of brothers and sisters of people with special health, developmental, and mental health concerns.
Here’s a poem written by one of our wonderful siblings!!
A Teacher in Disguise
I was not planned, but a blessing in disguise
I was a teacher before I knew I wanted to teach
I was a motivator to my brother, though I did not know I was
I motivated him to crawl and walk, yet I was still learning
He encourages me to be thankful I can walk
He inspires me to be thankful I can talk
He reminds me to be thankful I can drive a car
He motivates me to be thankful I can get a college degree
He inspires me to be thankful I’m able to get married
Because of him, I have friends from all over the states
Because of him, I appreciate the miracle of life
Because of him, we have an awareness walk
Because of him, I stepped out of my comfort zone
Because of him, we fundraise for awareness
Because of him, we raise awareness for 5p- syndrome
He was first a learner, who I taught
He is now a teacher, who I learn from
That walking and talking are gifts that need to be appreciated
That the miracle of life really is a miracle
That it’s really cool having a sibling with 5p- Syndrome
Because I knew a little bit about genetics before my friends did
© Jannie Boulanger
Grandparent Support Group
We are a support group for grandparents of a child with Cri-du-chat Syndrome.
We meet as a group during the annual conference to share what has been going on in our grandchild’s life. Some of us live in the same city and are involved in the caretaking of our grandchild; some of us live miles away and are unable to be involved daily. We are a support person for our children and grandchildren with Cri-du-chat Syndrome. We as grandparents help with fundraising for the Society. Many of the grandparents are either semi-retired or retired and have varied business expertise to offer.
Host A Grandparent’s Angel Fund Event!
Pick an occasion that is special to you. It could be your birthday, Mother’s day, Father’s day, Easter, Valentine’s Day, Mardi Gras, St. Patrick’s Day, etc.. In honor of that day, host a potluck dinner, yard sale or car wash. You, your family, friends, and neighbors can donate money at this event to the 5P- Society in the name of your grandchild. Donations are tax deductible!
Contact fellow Grandparents: