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StoryTeller, May 25, 2016, Kari Jo Faulhaber
This video captures the heart and soul of Jim Chalmers, an adult with Cri du Chat Syndrome. Jim breaks barriers, stereotypes and judgments of people with disabilities. A must see!!
POPSUGAR, May 24, 2016, Alessia Santoro
With the world focused on the transgender bathroom debate, Shannon Campbell, mother of 16-year-old Brennan, who has Cri du Chat Syndrome, also has a feeling about public bathrooms. “Everyone deserves to use bathrooms safely. But the population that is left behind is the disabled”. She was bold enough to show what she meant. In a FaceBook post she displayed a photo of her son being changed on the floor of a public restroom.
The News Tribune: Puyallup News, May 10, 2016, Heather DeRosas
The McDaniel family successfully lobbied Washington State Governor Jay Inslee to proclaim May 5 as Cri du Chat Syndrome Day.
Annual 5P- Society Conference
Each year the 5p- Society holds a conference for families and caregivers to come together to exchange information and bond over shared experiences. This conference is one of the main reasons for the existence of the Society, and a wonderful experience for conference attendees. It is a powerful experience to bring so many people from all walks of life together with the purpose of making their loved ones’ lives better.
The conference location is moved to a new location each year to provide a range of accessibility to families around North America. Our map below tells you where we have been and were we are going. We are currently looking to Portland or the North-West for 2019.
If you are interested in being a conference host family, please email email@example.com.
01 Apr 2017
Please join us for Be a Voice for 5p-! Music, raffles, food and fun! Saturday, April 1st, 2017, 6-9PM Barnaby's…
01 May 2017
International Cri du Chat awareness week is May 1-7, 2017 International Cri du Chat Awareness Day is May 5th. Each…
03 Aug 2017
Milwaukee, Wisconsin Festival of Families Location: Milwaukee Marriott West, W231 N 1600 Corporate Court, Waukesha, WI 53186 http://www.marriott.com/hotels/travel/mkemw-milwaukee-marriott-west/ Dates: August…
- Milwaukee Marriott West, W231 N 1600 Corporate Court, Waukesha, WI 53186Location
27 Jul 2018
Pittsburgh, Pennsylvania http://www.visitpittsburgh.com/ The 5p- Society 2018 Conference will be held on July 27-30 at the Pittsburgh Marriott City Center,…
- Pittsburgh Marriott City Center, 112 Washington Place, Pittsburgh, PA 15219Location