International 5p- Syndrome Awareness Month is the month of May 2024

International 5p- Syndrome Awareness Day is May 5th.

Each year the 5p- Society promotes a week of International awareness of 5P- Syndrome, or Cri du Chat. This purpose of this week is to raise awareness and encourage support of those with the Syndrome.  It also marks the 61st year of the finding of Cri du Chat Syndrome by Dr. Jerome Lejeune.

 

Members and supporters of the 5P- Society are encouraged to participate in the following campaigns:

Submit a Proclamation to Declare May 5 as 5p- Syndrome Awareness Day with your State Governor

Download this document and follow the steps and ask your State Governor to declare May 5 as 5p- Syndrome Awareness Day.

5p- Syndrome Proclamation Language 2024

Press Release

Download this Press Release and send to your local newspapers.  You will have an area where you can personalize the Press Release with your own information.

2024 Press Release (coming soon)

Share information cards:

Please download, print and share these fact cards with your family, friends, co-workers and general public.  Pass them out along with C5 during his travels.

I Can Video

View and share our “I Can” video that was produced in conjunction with the 50th Anniversary of the discovery of 5p- Syndrome (Cri du Chat Syndrome).

Striped Sock Campaign on May 5th

  •  Wear striped socks, one long and one short. The short sock represents the partially deleted fifth chromosomes. Post pictures on Social Media! #stripysocks #cdcsstripysocks
Virtual 5K for 5P-

Click here for more information

 

Faces of 5p- Campaign

This year we will be featuring your kiddos on their own Trading Card as an MVP of the C5 Sluggers.  Start thinking about what you’d like to HIGHLIGHT about your loved one with 5p- syndrome.

Click here to get the Faces of 5p- Awareness Campaign Info to fill out and return to director@fivepminus.org

 

Where in the World is C5?

Pose with a picture of our mascot C5 and post on Social Media #SeeC5 #5pminusawareness #stripysocks #groovy5kfor5p #thatshowweroll5kfor5p