Official Press Release for the 2017 Cri du Chat Syndrome Awareness Week by the 5p- Society
Brown Family from North Carolina
Confronting Cri du Chat with Grit and Grace
Brandon and Christina Brown were overjoyed to be first-time parents. Like most, they wondered if their baby would be a boy or a girl, and they hoped he or she would be healthy. The young couple welcomed Graham Timothy to their world on St. Patrick’s Day, 2016. All seemed well at first, but then came a string of health problems that worried the young couple. Graham began to have trouble with feedings. He was diagnosed with acid reflux and milk protein intolerance and was referred for feeding therapy. Their feeding therapist at Pediatric Boulevard in Indian Trail noticed Graham had general muscle weakness and recommended physical therapy. The physical therapist was concerned that Graham’s eyes were delayed in their ability to track movement.
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2017 Awareness Week: News and Events
As articles come in for Awareness Week, May 1-7, we will post those here for you to view.
Mukwonago child with Cri du Chat syndrome thrives and shines
Karen Pilarski, Lake Country Now, April 27, 2017
On the wall of the Losen’s Mukwonago home is a black frame with the saying, “Good things are going to happen.” Underneath the picture sits Evelyn, 7, and Marian Losen,5, snuggled on a beige chair.
Nearby their brother Jacob,9, lays on the floor with his iPad, his bright orange tennis shoes are sticking out from under him.
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