You will receive Conference Registration for four (4) individuals, and three (3) night stay at the conference hotel. You will also be mentioned in our conference materials and on the website.
• Reward #2: Raise $3,000
You will receive Conference Registration for four (4) individuals, and two-night stay at the conference hotel. You will also be mentioned in our conference materials and on the website.
• Reward #3: Raise $2,000
Get free registration for four individuals and one night at the conference hotel, listing on conference website, listing on event page.
• Reward #3: Raise $1,000
Get free registration for four individuals, listing on conference website and listing on event signage.
• Reward #4: Raise $500.00
Donors will be listed on conference website, posted on conference app, signage at registration table and social media blast.
• Reward #5: Raise $250.00
Donors will be listed on conference website, posted on conference app and signage at registration table.
• Reward #6: Raise $100.00
Donors will be listed on conference website, and signage at registration table.>
• Reward #7: In-kind donation
Donor will be listed on conference website and signage at registration table.
Reward recipients must make their own hotel reservations; internal changes will be made for payment of rooms. Each donor will receive a unique conference registration code. Conference registration form required.
If you registered or want to register but missed the live event, on or about October 1, 2021, all materials will be available in a dedicated Dropbox for all registrants. These materials will remain available until December 31, 2021, and include speaker presentation decks, recordings of the live presentations and links to the videos that were shown from our adults with 5p- and one of our siblings with a younger sister with 5p-.
You can still register until December 15, 2021 by clicking the BOOK ONLINE button above.
The 5p- Society is pleased to announce our annual two-day event will be hosted virtually this year!
When & Where?
Saturday, Sept. 18 & Sunday, Sept. 19
Saturday times: 9:00AM-6:30PM Pacific Time Zone/12:00PM- 9:30PM Eastern Time Zone
Sunday times: 9:00AM-4:30PM Pacific Time Zone/12:00PM-7:30PM Eastern Time Zone
Zoom details provided to registrants
Who should attend?
Individuals with 5p- Syndrome
Family of children & adults with 5p- Syndrome
Friends of individuals with 5p- Syndrome
Caretakers, therapists, teachers & medical professionals
Why should I attend?
Throughout the event, we plan to have our very popular parent sessions, a place for parents to interact with each other and talk, engage, help, network and learn from each other in a virtual space.
We also plan to have several presentations on topics of interest to the 5p- community. These presentations will be designed to last approximately 30 min with live Q&A time to follow. The presentations themselves will either be live or pre-recorded.
Join us for social time with Virtual Coffee Breaks where families can interact and chat. Get ready to dance at our Virtual Dance.
What’s on the schedule?
The finalized schedule will be shared in the coming weeks as speakers and events are confirmed. Some of the confirmed topics include:
Welcome to My World – a program to help instill empathy as a person navigates what it is like to have a disability.
What is the cost to attend?
Note that registered attendees will have access to presentations that are recorded and available for three months after the event, in case you cannot attend live. You can register at anytime now until December 15, 2021.
$25.00 per email- 5p- Society Members
$50.00 per email – Non-Members (Opportunity to register as a Member for $25.00)
Announcing the 8th Annual Virtual 5k for 5p- benefiting 5p- Society to be held during International 5p- Syndrome Awareness Week, May 1-15!
So you may be wondering what exactly IS a Virtual 5k?
It is just like any other 5k (or 3.1 miles), except there is no official race location (and no early start times)! The virtual part of this means no traveling or fighting crowds. It also means you get to choose where, with whom, and even how you want to go that 3.1 miles!
The Virtual 5k for 5p- can be done at any time and on any day during Awareness Week. It can even be done in increments throughout the course of the week! Do you walk to school in the morning, around town during the day, or around the office? Great! Keep track of your distance until you hit the 3.1 miles.
How To Participate
This event is open to individuals of all ages and abilities. Once you register, either as an individual or as part of a team, you are set! Team Captains will be in charge of hosting their local events, if they choose to gather as a group.
Since this is not a sanctioned event, there is no penalty if you are unable to complete any or all of the 5k. However, during Awareness Week, we will be asking participants to post pictures of you on your 5k route. This is completely optional – but since our goal is to bring awareness to 5p- Syndrome, we want to do just that! And by using the special #5pminus5k hashtag on your photos, we will be able to keep up with the fun! Stripy socks (one short, one long) are also encouraged, which you can also share on social media using #stripysocks!
(Registration will open February 6, 2023)
$5 Here Comes the Sun Registration
$25 Flower Power USA Registration – Includes registration fee, shirt, and custom 2023 Virtual 5k for 5p- race medal (U.S. participants only)
$35 All You Need is Love USA Registration – Includes registration fee, shirt, a pair of custom striped socks and a custom 2023 Virtual 5k for 5p- race medal (U.S. participants only)
$40 Flower Power International Registration – Includes registration fee, shirt, and custom 2023 Virtual 5k for 5p- race medal (International participants)
$50 All You Need is Love International Registration – Includes registration fee, shirt, a pair of custom striped socks and a custom 2023 Virtual 5k for 5p- race medal (International participants).
Become a Sponsor of the Virtual 5k for 5p- 2023 Event. Sponsorship Levels:
$100.00 The Twist Sponsor
Chubby Checkers popular song and dance sponsor includes two registrations for participants from your company/organization. Logo will be placed on running website and on the back of race shirts.
$250.00 Light My Fire Sponsor
The Doors spark a sponsorship that includes 3 registrations for participants from your company/organization. Logo will be placed on running website and on back of race shirts. Social media blast on our Facebook and Instagram.
$500.00 With a Little Help From My Friends
The Beatles iconic song sponsor includes 5 registrations for participants from company/organization. Logo will be placed on running website and on back of race shirts. Multiple promotional post on 5p- social media during awareness
$1,000.00 Good Vibrations Sponsor
The Beach Boys, the sounds of summer, package includes 10 registrations for your company/organization. Logo will be placed on running website and on back of race shirts. Multiple promotional post on 5p- social media during awareness week.
Two ways to sponsor, join the Virtual 5k for 5p- 2023 event (registration link above) and add your sponsorship with your registration, or click the box below
Due to the COVID-19 Pandemic, the 5p- Society postponed its 2020 Chicago conference to 2021.
The 5p- Society is happy to announce that we will be hosting a Virtual 5p- Syndrome Conference to provide a few social events, educational events and networking events in two days to replace and fill a void for those individuals who would like to continue to interact with each other.
Date: September 12 & 13, 2020
Times: September 12, 2020 – 11:30 AM to 9:00 PM (EST)
September 13, 2020 – 11:30 AM to 5:00 PM (EST)
Registration required: Cost will be as follows:
5p- Society Members: $25.00 (per email address)
Non-Members: $50.00 (per email address; with $25.00 going towards membership fee)
REGISTRATION DEADLINE 8/31/2020
Please click on the link below to view the schedule. Please note that all times are in Eastern Standard Time.
AmySue Reilly, Ph.D. – Effective Positive Behavior Support
Geoff Towers, MD – Puberty in Girls with 5p-
Laurel Daniels Abbruzzese, PT, Ed.D – Physical Therapy and 5p- Syndrome: Research Findings
András N. Spaan, MD, PhD – 5p- Syndrome & Infections Study Update
Stephen Furnari, Esq. – Guardianship & Cri du Chat: How to Best Protect your Child When He or She Turns 18
Michelle Myatt – Coping with COVID-19 &Homeschooling
Becky Owens – “Welcome to My World”
Parent Panel Information
During our annual conferences one of our most popular sessions would be the Parent Panels. For those of you who do not know what a parent panel is, it is like an in-person Facebook group.
A chance to discuss topics of interest with families who are in your child’s/adult’s age range.
An opportunity to use other families as sounding boards to help answer any questions or concerns you may have about a wide array of topics related to Cri Du Chat Syndrome.
For those of you who have been to a conference, what would you tell a new family about the parent panels?
We will be releasing the schedule soon with the day and time of the Parent Panel for your child’s/adult’s age range. We can’t wait to meet you and learn more about you, your child/adult, your family and what questions you may have.
The 35th Annual In-Person 5p- Society Annual Conference will be held in Charlotte, North Carolina.
Host Family Message
We are proud to announce that the 2022 5P- Society’s annual conference will be held in Charlotte, NC at the Sonesta Charlotte Executive Park hotel. The Sonesta Charlotte is a beautiful, newly appointed hotel that is located just minutes away from uptown Charlotte and Southend, one of the city’s trendiest areas.
Charlotte is known as The Queen City, named after Queen Charlotte, as it was founded in 1768 by European colonists under King George III. To honor this, the conference theme will be “A Royal Celebration”. Charlotte is a wonderful, family-friendly city with something for people of all ages and interests. You will find beautiful parks, greenways, modern cityscapes, along with a variety of culturally eclectic areas, lively neighborhoods and suburbs all with a touch of southern heritage. There is no lack of sportsmanship in the area as Charlotte boasts five (soon to be six) professional sports teams, along with several college and university teams. While in Charlotte, you can expect to experience the urban lifestyle along with good ol’ southern hospitality. Charlotte’s truly got a lot! When visiting Charlotte there are several highlights to consider exploring:
W. & Rita Bourne Karen Hoover Brandon & Christina Brown & Family Russ & Amanda Bennett & Family Dennis & Joan Noonan Edwin & Debra Fischer Mary Jane King RTHT Investments, LLC Reid Boston Gloria Griffin Debra Russell Angela & Nick Wallace Linda Harris
Would you like to be a Sponsor?
Raise Money for the Conference and Get Rewarded
Conference Rewards Program
We greatly appreciate any and all donations to assist the host families in making the conference a memorable event. We have a rewards program where you can be rewarded for your donations. Rewards consist of free registration to the conference for four individuals, free hotel rooms for nights of the conference, logo or name on back of conference shirt, listing on this website, listing on conference app and/or social media blasts.
Where do your monies go? Events include Friday Family Event, Sibling Events, Breakfast for all three days of the conference, Child Care needs, Welcome Reception, Conference Banquet and Family Dance to name a few. In kind donations can help with Child Care and Hospitality Suite.
King Reward: Donate $5,000 and get free registration for four individuals, three nights at the conference hotel, listing on the conference website, logo on conference t-shirt and listing on event signage.
Queen Reward: Donate $3,000 and get free registration for four individuals, two nights at the conference hotel, listing on the conference website, logo on conference t-shirt and listing on event signage.
Prince Reward: Donate $2,000 and get free registration for four individuals, one night at the conference hotel, listing on the conference website, logo on conference t-shirt and listing on event signage.
Princess Reward: Donate $1,000 and get free registration for four individuals, listing on the conference website, logo on conference t-shirt and listing on event signage.
Duke Reward: Donate $500 and you will be listed on conference website, back of conference t-shirt, posted on conference app, signage at registration table and social media blast.
Duchess Reward: Donate $250 and you will be listed on the conference website, back of conference t-shirt, posted on conference app and signage at registration table.
Knight Reward: Donate $100 and you will be listed on the conference website, back of the conference t-shirt and signage at registration table.
Jester Reward: In-Kind Donations will be listed on the conference website and signage at the registration table.
Click on the button below to go to the donation page.
Join us for the 38th annual 5p- Society conference and get a “Taste of Chicago.”
Conference 2023 will be held at the beautiful Eaglewood Resort and Spa, where the host families will bring the best of Chicago to you.
Chicago-style hot dogs, Italian beef, deep dish pizza, Garrett’s Popcorn and cool off with a delicious Italian ice.
Families can enjoy movies while floating in the pool, a round of golf, or cosmic bowling. You will be able to relax with the rejuvenating spa treatment or a fun yoga class. We may even have a visit from Chicago’s number one sports mascots.
We hope to see you in Sweet Home Chicago, July 13-16, 2023.
Your Chicago Host Families
The Cutrara Family
The Jones Family
The Burke Family
The Winders Family
T H U R S D A Y , J U L Y 1 3 , 2 0 2 3
5:00 PM Registration and Welcome Reception
7:00 PM New to a 5p- Conference join us for the New Family Orientation
7:00 PM Siblings get the chance to meet each other – Bowling alley on site rec center
7:00 PM Hospitality Suite (flow)
F R I D A Y , J U L Y 1 4 , 2 0 2 3
7:30 AM-12:00 PM Kid Care open
8:30 AM-12:00 PM meeting, networking and learning from each other with our various Workshops
9:00 AM – 5:00 PM Blood collection for research (Simon Searchlight Foundation)
12:00 PM-3:30 PM, join us for a Family Fun Event. We will be “tasting” some authentic foods from Chicago, Food Truck Style on site and having one large picnic with fun and games.
4:00 PM Grandparents Workshop
Dinner is on your own. Feel free to explore Chicago.
7:00 PM Hospitality Suite (flow)
8:00 PM Board of Directors meeting
S A T U R D A Y , J U L Y 1 5 , 2 0 2 3
7:30 AM – 12:00 PM Kid Care open for morning sessions
9:00 AM Parents, Todd & Kristin Evans will be our keynote speakers, presenting on Beyond Surviving to Living Fully.
9:00 AM – 5:00 PM Blood draws for research (Simon Searchlight Foundation)
10:30 AM -5:00 PM three tracks of speakers, each with different topics and for different audiences.
10:00 AM – 4:00 PM Siblings will be heading to a trampoline park, lunch included.
12:00 PM-2:00 PM Lunch is on your own
2:00 PM-5:00 PM Kid Care open for afternoon sessions
6:30 PM-9:30 PM Banquet, family dance, general membership meeting and awards.
Photographer will be available for family pictures.
We will have our Raffles (ticket & silent auction)
9:00 PM Hospitality Suite (flow)
S U N D A Y , J U L Y 1 6 , 2 0 2 3
9:00 AM-12:00 PM Closing remarks by various individuals with 5p- Syndrome.
These special speakers are slated to inspire you.
Don’t forget your camera for some special pictures with your new friends.
Let’s talk about the Iowa 2024.
Speakers & Topics
(Bios in the Conference Brochure)
Todd Evans, PhD, MA and Kristin Evans, MA, MS, LMSW
Dr. Todd Evans: facilitating the Dad’s Workshop
Kristin: facilitating the Mom’s Workshop
Todd & Kristin: Beyond Surviving to Living Fully
Dennis Campbell, Ph.D. Dr. Dennis Campbell: (1) 5p- Syndrome 101 and (2) Transition
AmySue Reilly, Ph.D.
Dr. AmySue Reilly: Effective Behavior Modification
Hollie Brookman, RDH
Hollie: Improved Dental Checkups Begin at Home
Jeanine: Charting the Journey – Special Needs Planning Program
Carly Lapin, Ph.D.
Dr. Carly Lapin: (1) Toilet Training and (2) Managing Challenging Behaviors
Claire: Neuromovement for the 5p- syndrome child – Anat Baniel Theory
Laura: Roundtable – Raising Adults with 5p- Syndrome
The 5p– Society is happy to sponsor five Regional Family Get-Togethers throughout North America to help families connect, share experiences and create friendships.
Western Regional Family Get-Together Information
Date: Saturday, April 27, 2019
Time: 11:00 AM to 3:00 PM
Location: Justin Myron E. Leavitt and Jaycee Community Park, 2100 E. St. Louis Ave, Las Vegas, NV 89104
Host: Kathryn Gladden
RSVP: Phone or Text: 702-845-5019 or Email: firstname.lastname@example.org
The is a FREE event for families and friends of an individual with Cri du Chat Syndrome.
We look forward to hosting this Family Get-Together and meeting new friends in Las Vegas. We hope you can join us. The park has adaptive play equipment and a water play area. We will be serving lunch. Then at 3:00 in the same park, Challenger Little League will have a baseball game for the CDC kids and their siblings.
5p- Syndrome is a chromosomal deletion disorder resulting in a wide spectrum of intellectual and developmental abilities. Each year in the United States, approximately 50 to 60 children are born with 5p- Syndrome, also known as Cri du Chat Syndrome. These individuals will likely need a lifetime of support. Our Society is a support organization that works diligently to spread awareness of the syndrome and provides valuable information, education and support for families, educators, and medical professionals in order to maximize the quality of life for those with 5p- Syndrome. Join us.