Pittsburgh, Pennsylvania

http://www.visitpittsburgh.com/

The 5p- Society 2018 Conference will be held on July 26-29 at the Pittsburgh Marriott City Center, 112 Washington Place, Pittsburgh, PA 15219,

PLEASE NOTE THAT THE CONFERENCE HOTEL IS SOLD OUT OF ROOMS FOR THE DATES OF THE CONFERENCE AT THE REDUCED RATE OF $142.00 PER NIGHT

Make your reservations by calling (412) 471-4000.

Please note there is also an $18.00 per night parking rate with in and out privileges (it says $22, but it is $18).

Registration Opens March 1, 2018

Please download conference brochure here for more information

Dates to remember

Early bird discounted registration due by July 1^st.

Register before July 1st to pay the discounted Family Registration rate of $150.00 for members, $200.00 for non-members, $75.00 for Professionals.  After July 1st regular Family Registration rates will take effect $200.00 for members, $250.00 for non-members and $100.00 for Professionals.

Family Registration:

Family registration is for UP to 2 adults and 2 children (under 17).  Additional adults are $50.00 and additional children are $25.00.Please note that a child is considered under 17 and will receive a child’s meal at the banquet. If you would like your “child” who is under 17 to receive an adult meal, please indicated under “Meal Selection.” You will be billed an additional $25.00. We recognize that some adults with Cri du Chat Syndrome may need a soft meal and the children’s meal would be a better choice for them. If this is the case, please register them as a “child” and indicate under “Special Dietary Needs.” Please fill out completely for each person who is attending. If you require additional information, please send an email to director@fivepminus.org.

Please use the paper registration link if you are paying by check or money order.  If you are paying by credit or debit card, choose one of the following online links:

5p- Society Members Registration link

Non-Member Registration link

Professional Registration link

Scholarship Opportunities to attend the conference

Each year the 5p- Society provides opportunity for families to attend the conference through their Financial Assistance Scholarship program. This year the 5p- Society has received funding for five (5) scholarships.  The scholarships will pay for one hotel room for the three nights of the conference (Thursday, Friday & Saturday) and registration for two 2 adults and 2 children.  To review the guidelines and to apply please go to the 5p- Society Financial Assistance Application.

REWARDS PROGRAM

Raise money for the 2018 conference and get rewarded!

Pittsburgh Pirates Reward:  Raise $1500.00 and the 5p- Society will comp your registration fee for up to 2 adults and 2 children.

Pittsburgh Penguins Reward:  Raise $3,000.00 and the 5p- Society will comp your registration fee for up to 2 adults and 2 children and one night of your hotel stay.

Pittsburgh Steelers Reward:  Raise $5,000 and the 5p- Society will comp your registration fee for up to 2 adults and 2 children and 3 nights of your hotel stay.

THE CHAMPIONS OF 5P-

This year we will be preparing a picture of your child or adult with 5p-/Cri du Chat Syndrome on a Magazine Cover.  Please send your favorite picture to Laura at director@fivepminus.org.  Make sure it is in jpeg format and portrait pictures work the best.  Also, provide us with what you feel your child is a Champion of.

CONFERENCE OF CHAMPIONS

Yinz (you all) better red up (clean up) because the 5P- Society’s Annual Conference for 2018 will be held in Pittsburgh, PA at the Pittsburgh Marriott City Center. This hotel is located across from the PPG Paints Arena which is home of the 2016 and 2017 Back-to-Back Stanley Cup Champions, the Pittsburgh Penguins. While entering the city, guests will experience a breathtaking view of the city while driving in on one of our famous yellow bridges overlooking the three rivers. Pittsburgh is known as the City of Bridges, Steel City because of its well-known production of steel, and of course, the City of Champions!

Yinzers (Pittsburghers) are super proud of their sports and have a large fan base from all over the world. The Pittsburgh Steelers have won 6 Super Bowls, Penguins have 5 Stanley Cup wins, and the Pirates have won 5 World Series Championships.

The City of Champions has a lot to offer with endless options for entertainment:

• Pittsburgh Zoo & PPG Aquarium
• Point State Park
• Carnegie Museum of Natural History & Art
• Mount Washington
• Heinz History Center
• Rivers Casino
• Children’s Museum of Pittsburgh
• Sandcastle Waterpark
• Kennywood Amusement Park
• Carnegie Science Center
• Strip District
• Southside Works
• Molly’s Trolleys
• Duquesne Incline
• Gateway Clipper
• Three Rivers
• Just Ducky Tours
• Flight 93 Memorial (82 miles away)

Brush up on your Pittsburghese and join us Dahntahn (downtown).

We cannot wait to welcome our 5P- Family to the ‘Burgh to celebrate our Champions at the “Conference of Champions!”

Your Host Families are:

Derek Stevens & Marie Corrado
Johnna & Raeann Sleith
Patricia Fowler
John & Christina Yauch
Matt & Heather Grasso

Milwaukee, Wisconsin

Festival of Families

• Location:  Milwaukee Marriott West, W231 N 1600 Corporate Court, Waukesha, WI 53186
  http://www.marriott.com/hotels/travel/mkemw-milwaukee-marriott-west/
• Dates:  August 3 through August 6, 2017
• Room Rates:  $119.00 night for double and king size rooms (room rate guaranteed until July 3 if available) and there are limited number of connectors.  Please note as of 5/5/2017, we are at a near sold out situation and only king size rooms are available. Make your reservations by calling Rachel Kruk.  Her direct phone number is 262-832-0840. 

Conference Brochure available now.  Download Conference Brochure

5p- Society Hall of Fame

To honor that special parent(s), sibling, grandparent(s), or Volunteer of Year, who has gone above and beyond the call of duty, for the 5p– Society, please fill out the below form and submit it to 5p– Society, PO Box 268, Lakewood, California 90714 or send in an email to director@fivepminus.org.

Please be sure to include all of the information, especially the honoree’s mailing address and phone number.  Also, be sure to tell us how this person went above and beyond for the 5p– Society.  We look forward to hearing from you!  Awards will be presented at the 2017 National Conference in Milwaukee, Wisconsin.

Deadline for submission is:  June 25, 2017

Download the Hall of Fame Submission Form

Registration opens March 1, 2017:

• Member registration fees – 
  • Early bird – $150.00 for up to 2 adults and 2 children (additional adults $50, additional children $25) if received by July 1, 2017.  
  • After July 1, 2017 it will be $200.00 for up to 2 adults and 2 children (additional adults $50, additional children $25).
  • Click here for the online registration link for Members
    
• Non-Member registration fees –
  • Early bird – $200.00 for up to 2 adults and 2 children (additional adults $50, additional children $25) if received by July 1, 2017.
  • After July 1, 2017 it will be $250.00 for up to 2 adults and 2 children (addition adults $50, additional children $25).
  • Click here for the online registration link for Non-Members
    
• Professional registration fees –
  • Early bird – $75.00 if received by July 1, 2017.
  • After July 1, 2017 it will be $100.00. Professionals = doctors, nurses, therapists, teachers.
  • Click here for the online registration link for Professionals
• Any questions, please send Laura an email at director@fivepminus.org.

Rewards Program

Raise funds for the conference, reap rewards!! Once again, the 5p- Society will institute its rewards program for those who fundraise for the conference. The breakdown and rewards are as follows:

1. Raise $1500.00 and your conference registration for UP TO 2 adults and 2 children will be covered;
2. Raise $3000.00 and your conference registration for UP TO 2 adults and 2 children will be covered and one night of your hotel stay will be covered;
3. Raise $5000.00 and your conference registration for UP TO 2 adults and 2 children will be covered and three nights of your hotel stay will be covered.

Scholarships

Scholarships will be available for 5 (five) families who would like to attend the conference but have difficulty coming up with the registration and/or hotel fee. Application and Guidelines will be available March 1st.  Deadline to submit online will be May 1st.  Recipients will be notified by May 15th.   Download the Financial Assistance Scholarship Application here.

Volunteer opportunities

There are several volunteer opportunities at the conference.  Child care helpers (teens and adults) are needed to work in our 5 child care rooms for both Friday morning and all day Saturday.  Volunteers are also needed to accompany the siblings on their outing all day Saturday.  If you are interested, or know someone who may be, please direct them to our 5p- Society Conference Volunteer Form.  We would be happy to answer any questions you may have by sending an email to director@fivepminus.org.

Confirmed Speakers

The following Speakers and Presentation Topics have been confirmed

• Dr. Dennis Campbell – Cri du Chat 101
• Dr. AmySue Reilly – Effective Behavior Modification
• Dr. Jennifer Rosinia – Sensory Processing Disorder
• Dr. John Thometz – Orthopedic Issues (Scoliosis) and Tom Current, Hanger Mobility (Orthotics including braces, SMO’s, AFO’s, helmets, etc.)
• Dr. Alfonso Martinez – GI Issues and Cri du Chat Syndrome
• Shanida Mathieu – Effective IEP
• Lisa Juliar – Technology as a Life Tool
• Erin Syverson and Michaela Cline – Genetics
• Mary Anne Elhert – Planning for the future – ABLEAct
• Jennifer Eggert – Speech and Language Therapy
• Nick Wallace – Father’s Workshop
• Custom Canines – Therapy Dogs
• Kent Nicholls – New Family Orientation
• James Chalmers – My life with Cri du Chat Syndrome
• Jannie Boulanger – Living with a brother with Cri du Chat Syndrome

Host Family Message

Hello 5P- family and friends!

The 2017 5P- Society’s annual conference will be held in Milwaukee, WI at the Milwaukee Marriott West hotel. The Marriott West is a beautiful, newly renovated hotel that is located just minutes away from Milwaukee area’s most popular water park, The Country Springs Hotel/Water Park. It really is fun for all ages!

Milwaukee is a wonderful city to visit (http://visitmilwaukee.org/visitors) and is known as the city of festivals. There are different festivals held almost every week in the summer months. It is also known as the Brew City for its deep rooted brewing history and if you’re interested, most of the breweries offer tours to learn more about their beginnings. Another site to see is the Milwaukee RiverWalk which is a 3 mile path along the Milwaukee River. It is a great way to view Milwaukee’s beautiful downtown area. One thing is for sure, you cannot leave Milwaukee without visiting the Bronze Fonze!

When visiting Wisconsin you might consider these other fun options as well.

• The Milwaukee County Zoo,
• the Harley Davidson Museum,
• the Wisconsin State Fair,
• Wisconsin Dells-which is known as the waterpark capital of the world (and is only about 2 hours from the Marriott),
• Milwaukee Public Museum, Discovery World, or Betty Brinn Children’s Museum.
• Lambeau field-home of The Green Bay Packers
• Sightsee in Madison.
• There are so many great places to visit. We hope to see you in Milwaukee!

Your Host Families are:
Hutch & Brenda Renk,
Jason & Hillary Losen,
Alan & Maria Isberner
The Milwaukee Conference Committee